Archive for April, 2011
Going the Distance
[As you know, the National Foundation for Celiac Awareness staff members are big Phillies fans. So when one of our newest volunteers, Nadina Fraimow, told us she shared the same passion for sports, wellness and all things Phillies, we had to get her on board. Nadina will be sharing her gluten-free experience throughout the 2011 Phillies season.]
Going the Distance
A Phightin’ to Be Gluten Free Blog
April celebrates great milestones, and this year is no exception. Among the highlights: my birthday, warmer weather and the Phightin’ Phils. Yes, Victorino’s inside-the park home run against the San Diego Padres was worthy of all my cheers and DVR replays. However, I am referring to the Phillies’ back-to-back complete games – a feat we haven’t seen since 1999, according to the Associated Press. Cliff Lee pitched a 12-strikeout, three-hit shutout in a 4-0 victory over the Washington Nationals, precisely a day after Roy Halladay pitched nine victorious innings.
Today, Cliff Lee’s record is 2-2 after he gave up four runs on five hits over seven innings to take the 0-4 loss against the Arizona Diamondbacks. Much like Lee’s season thus far, my journey and fight for a healthy, happy gluten-free life includes both wins and losses.
My April success stories combine my love of family and delicious food/beverages, as I enjoyed two Passover Seders, a birthday dinner at Distrito and a cold brew at Citizens Bank Park. If you’re Phightin’ to be Gluten-Free like me, even a few gluten-free options can go a long way. For instance, my enjoyment (and that of my family) was elevated to a whole new level with gluten-free matzoh and cakes at our Passover Seders, Iron Chef Garces’ flavorful los karne beef, pollo and and nopales tacos at Distrito, and refreshing Redbridge gluten-free beer at Citizens Bank Park.
This month, Cliff Lee and I share an even ratio of wins to losses (a.k.a., my setbacks). The more serious moments along my journey included a stomach study at the Hospital University of Pennsylvania (HUP) and uncomfortable bloating episodes.
Shortly between Cliff Lee’s shutout against the Nationals and one of my setbacks, I read an article on espn.comwhere Lee shared: “I want to be a guy who throws complete games every time. That’s not really realistic, but going into each game, that’s what I’m trying to do.”
Lee gets it. I get it. Now, it’s your turn. Sure, I want to be 100% healthy, happy and gluten-free every day. That may not be realistic, but going into each day, that’s what I’m striving to do – all season long!
– Nadina
*Get your tickets to NFCA’s Celiac Awareness Night at the Phillies and Celiac Awareness Night at the Mets (vs. the Phillies!) by visiting www.CeliacCentral.org »
About Nadina:
Nadina Fraimow began volunteering with the National Foundation for Celiac Awareness (NFCA) in April 2011, and will be happy to answer messages sent to the info@celiaccentral.org email account. Nadina learned that she has a gluten sensitivity in February 2011, and is grateful for having been diagnosed promptly and correctly by a knowledgeable gastroenterologist. She enjoys running, shopping for gluten-free sweets and creating recipes that are both tasty and healthy. Nadina is a Marketing and Communications professional living and working in Philadelphia. Nadina is also a proud Penn State alumna and an avid fan of the Phillies.
Welcome Emily: NFCA’s Newest Team Member & Culinary Whiz
[Emily began working with the National Foundation for Celiac Awareness (NFCA) in March 2011, and assists with NFCA’s GREAT Kitchens gluten-free foodservice training program. She became interested in the gluten-free diet in 2010 through a culinary school project. Emily received her BA from the University of Nebraska-Lincoln in Art History and Criticism in 2005, and is now working towards a Culinary Arts degree. She enjoys cooking, working out, reading and creating recipes for alternative diets.]
My Introduction to the GREAT Big Gluten-Free World
Hello celiac and gluten-free friends! My name is Emily Hansen, NFCA’s new intern.
I became interested in alternative diets (specifically vegan, gluten-free, raw foods, diabetic and, recently, kosher) in mid-2010 during some extracurricular research for culinary school. At that point, I was midway through the program and realized that our classes gave us merely a passing overview of this important segment of the foodservice market, an unfortunate result of cramming all the basics into a 2-year program. So, I set out to learn as much as I could on my own.
In the fall of 2010, I was enrolled in a class that required each student to put on a high-end, 5- to 7-course meal in a restaurant setting for paying customers. I was already set on creating a delicious menu of healthy low calorie, low sodium foods, when my instructor mentioned that he wished someone would do a gluten-free meal.
I scanned my recipes and realized that most of my menu choices already were gluten-free, and those that weren’t could easily be modified without losing taste or nutritional qualities. I accepted the challenge!
My teacher introduced me to NFCA’s Beckee Moreland, whom he had worked with before, and suggested I reach out to her in preparation for the project. A gluten-free expert with a nationally recognized organization, Beckee offered to look over my menu and advise me when needed. I couldn’t have been more thrilled!
Here was my Gluten-Free Menu:
Raw Oysters on the Half Shell
Served with a tangy Mignonette sauce.
Butternut Squash Soup
A chilled blend of seasonal butternut squash and ginger.
Gluten-Free Multi-Grain Bread
Soft, moist bread made from a variety of wholesome grains.
Jicama and Bell Pepper Salad
A crisp mixture of jicama, smoked corn, and red, yellow and green bell peppers tossed with peppercorn vinaigrette.
Cucumber Granité
A refreshing blend of cucumber and champagne vinegar.
Loin of Lamb with Blood Orange Sauce
Succulent lamb loin drizzled in a savory-sweet blood orange sauce served atop a bed of wild rice with hazelnut. Accompanied by steamed garlic spinach.
Molten Chocolate Cake with Vanilla Bean Ice Cream
Warm, rich chocolate cake paired with cool, smooth vanilla bean ice cream.
My dinner went spectacularly! The food was great and the attendance phenomenal. I was proud that so many members of the celiac community came and enjoyed our efforts.
I believe with help of Beckee, my amazing classmates and incredible instructor, we proved to our diners that healthy, gluten-free food can taste as wonderful, or even more so, than run-of-the-mill fare.
– Emily
*For gluten-free recipes and meal ideas, visit NFCA’s Recipe of the Week blog and Seasonal Gluten-Free Recipe Box.
Finding Relief: My Gluten-Free First Aid Kit
[As you know, the National Foundation for Celiac Awareness staff members are big Phillies fans. So when one of our newest volunteers, Nadina Fraimow, told us she shared the same passion for sports, wellness and all things Phillies, we had to get her on board. Nadina will be sharing her gluten-free experience throughout the 2011 Phillies season.]
Stuck on the Mound
A Phightin’ to Be Gluten Free Blog
As I watched Cliff Lee’s second game, I commiserated with his frustration and look of being stuck on the mound. In an off night for Lee, he pitched merely 3 1/3 innings and gave up six runs, ten hits, one walk, and three strikeouts.
My sense of stuck has occurred numerous times, especially after a rough gluten episode or doctor blunder. However, I have learned to brush off defeat and snap out of it, with the help from something I call the relief bag. Similar to a relief pitcher, or pinch hitter, the items in my “go to” bag offer extra support.
The Gluten Free Bible by Jax Peters Lowell- A bon voyage gift from my Mom before traveling post diagnosis. This book, intended to be an easy plane read, became my patient advocate guide. For example, prior to reading Chapter 8, “How to Get a Chef to Eat out of Your Hand”, enjoyable restaurant experiences were infrequent and dining out, in a city full of amazing cuisine became obsolete. I found that through reading this book, my food preparation concerns diminished just in time to enjoy some memorable dinners with my boyfriend on vacation.
Heating pad – An oldie, but goodie in my medicine chest that eases discomfort from sports injuries, cramps and bloating. My travel friendly heating pad alleviates pressure from “gluten episodes” and helps relax clenched stomach muscles.
Running sneakers, yoga mat and Be-LEE-ve t-shirt- From gym bag to relief bag, these items are holistic strengtheners and attitude changers. They help me push through the set backs and restore balance in my life. For example, I unfortunately experienced all the side effects of a newly prescribed stomach medication on the night of the Oscars, one of my favorite times of year to relax. Decked out in my Lee apparel, I yoga stretched and distance ran a total of 12.5 miles while cheering The Social Network, The Kings Speech and myself to victory.
Trader Joe’s Gluten Free Dark Chocolate Nibs- As a chocolate lover, I always make sure I have a tin of these sweets in my kitchen cabinet, office drawer and purse. After numerous occasions (at weddings, sporting games, airports, etc.) of being unprepared and just plain miserable with hunger, I have learned to always carry gluten free emergency “in a pinch” snacks and to never go anywhere hungry.
Phightin’ Phillies fans: What items go into your relief bag?
About Nadina
Nadina Fraimow began volunteering with the National Foundation for Celiac Awareness (NFCA) in April 2011, and will be happy to answer messages sent to the info@celiaccentral.org email account. Nadina learned that she had a gluten sensitivity in February 2011, and is grateful for having been diagnosed promptly and correctly by a knowledgeable gastroenterologist. She enjoys running, shopping for gluten free sweets and creating recipes that are both tasty and healthy. Nadina is a Marketing and Communications professional living and working in Philadelphia. Nadina is also a proud Penn State alumna and an avid fan of the Phillies.
Free to Be Gluten-Free
[As you know, the National Foundation for Celiac Awareness staff members are big Phillies fans. So when one of our newest volunteers, Nadina Fraimow, told us she shared the same passion for sports, wellness and all things Phillies, we had to get her on board. Nadina will be sharing her gluten-free experience throughout the 2011 Phillies season.]
Phightin’ to Be Gluten Free
As Cliff Lee throws his first pitch of the 2011 baseball season, I think about the 162 games and long journey ahead to the playoffs. The Phillies, with players like Roy Halladay and Chase Utley, succeed because of their true grit. Collectively, they are our Phightin’ Phills.
As I watch the team, I can’t help but reflect upon my personal 162 day plus gluten-free journey, and the fight for a healthy, happy gluten-free life. Much like the Phillies 2010 season, my journey contains highs, lows and – my favorite – the breakthroughs.
I am not a gluten-free expert, but after 9 months of a full food diary, 3 GI consultations, 3 nutrition consultations, 3 probiotics, 28+ bottles of myralax, 1 digestive enzyme, 4 self help books and 1 supportive family, I feel passionate about sharing my season highlights with other fans fighting to be gluten-free.
Hypothetically, if ESPN were to compile the top plays from my season thus far, the highlights would feature:
- Enjoying a Flyers game with my family (the stadium has gluten-free concession stands!)
- Finding a GI doctor who recommended an alternative to Myralax
- Getting involved with the National Foundation for Celiac Awareness
- Establishing my voice in the gluten-free community with this first blog entry
Over the course of the next 162 games to the playoffs, I will share with Phillies fans and the celiac & gluten intolerant community alike, why it’s time to Be-LEE-ve!
– Nadina
*Get your tickets to NFCA’s Celiac Awareness Night at the Phillies and Celiac Awareness Night at the Mets (vs. the Phillies!) by visiting www.CeliacCentral.org »
About Nadina:
Nadina Fraimow began volunteering with the National Foundation for Celiac Awareness (NFCA) in April 2011, and will be happy to answer messages sent to the info@celiaccentral.org email account. Nadina learned that she has a gluten sensitivity in February 2011, and is grateful for having been diagnosed promptly and correctly by a knowledgeable gastroenterologist. She enjoys running, shopping for gluten-free sweets and creating recipes that are both tasty and healthy. Nadina is a Marketing and Communications professional living and working in Philadelphia. Nadina is also a proud Penn State alumna and an avid fan of the Phillies.
Gluten-Free Passover: Restriction or Freedom?
The Jewish holiday of Passover centers on the symbolic use of food. The 8-day holiday prohibits Jews from eating grains, unless they have come into contact with water for less than 18 minutes and were prepared under strict Rabbinic supervision.
While Matzo (typically made from wheat) is a staple of the Passover diet, many products specially made for Passover contain potato and other creative mixes of non-grain ingredients. These are valuable products to those on a gluten-free diet, and they may only be found at this time of year.
Passover celebrates the journey of the Jewish people from slavery to freedom, when they left Egypt with only unleavened dough on their backs. The holiday encourages us to put ourselves in the shoes of our ancestors, look at our own modern lives, and take action against oppression.
It’s an interesting dichotomy that we restrict what we eat to remember our ancestors, but at the same time we celebrate our many freedoms. We recall the stories and embrace the position we have come to enjoy as 21st century Americans.
But as I look at my own family, I can’t help but think of my daughter Molly, and how she lives every day as a slave to her disease. Not only is she restricted from the basic freedom to choose what she eats, but she also must opt out of many social situations because of cross-contamination concerns or a lack of acceptable food choices.
I am thankful, however, that Molly knows the face of her oppressor. Her diagnosis allows us to make accommodations that embrace her at our table. My Grandma Pauline was not so lucky. She sat out of many holidays and family celebrations due to (what I think was) undiagnosed celiac disease. She spent much of her 84 years not able to travel and not even able to leave her bathroom. She didn’t know the face of her enemy.
The Torah refers to Egypt as a narrow place. When I think of Molly eating alone in her dorm room every night while all other first-year students happily socialize in the dining hall, or I think of my grandmother sequestered to her tiny bathroom while our family tried to enjoy another Thanksgiving without her, I understand this narrow place in a whole new way.
Fortunately, even Matzo is now offered in gluten-free versions. I recently had the chance to test out Yehuda’s Gluten-Free Matzo-Style Squares. How did it go? Find out by reading my review at www.GlutenFreeHotProducts.com.
How do you celebrate gluten-free Passover in your home? Do you focus more on the restrictions or freedoms associated with the holiday?
– Jennifer
Whitney & Kristin’s Week Long ‘Opening Day’ Celebration
While my baseball fandom (particularly when it comes to the Philadelphia Phillies) has already been well chronicled on the staff blog, last week marked the beginning of what is sure to be four months of rabid insanity and delusion…MLB Opening Day!
Kristin and I chose to celebrate the entire week in style by attending not one, but two Phillies games – a Tuesday, March 29th pre-season game verses the Pittsburgh Pirates, and on Saturday, April 1st, to watch the Fightin’ Phils face off against the Houston Astros.
For Phillies fans, the 2011 World Series campaign is already off to a great start, our home team swept the Astros and will start the season at 3-0 for the first time since 1970.
Needless to say, we’ve got some rather ‘High Hopes’ for our team at the moment.
On a related note, it seems that more and more MLB teams are welcoming gluten-free baseball fans this season by ramping up their stadium food options. Here’s just a smattering of teams that have already made headlines this year:
- http://www.prweb.com/releases/2011/03/prweb5199874.htm
- http://www.stltoday.com/entertainment/dining/restaurants/article_6974dc2d-fecb-536b-94bc-29004671dce3.html
Florida (Tampa Bay Rays)
- http://jacksonville.com/opinion/blog/455301/mark-basch/2011-03-28/tropicana-field-offering-gluten-free-food
- http://www.tampabay.com/sports/baseball/rays/tampa-bay-rays-roll-out-new-food-offerings-and-one-is-a-home-run/1160663
Chicago (Cubs)
- http://www.chicagonow.com/blogs/gladly-gluten-free/2011/04/cubs-hit-a-home-run-with-gluten-free-concessions.html
- http://www.examiner.com/family-health-in-chicago/friendly-confines-partners-with-local-business-to-provide-allergy-friendly-foods
San Francisco (Giants)
And of course, the entire NFCA office is looking forward to hosting TWO Celiac Disease Awareness Nights with MLB Teams this season – Friday, May 27th with the New York Mets, and Friday, July 8th with the Philadelphia Phillies.
- Mets: http://www.meetup.com/Celiac/events/17175537/
- Phillies: http://www.celiaccentral.org/Events/Upcoming-Events/78/
So much gluten-free fun to come this summer!
-Whitney