Posts filed under ‘Nancy’
Last month several members of the National Foundation for Celiac Awareness (NFCA) team participated in the 15th International Celiac Disease Symposium (ICDS), the most comprehensive celiac disease meeting in the world. Held September 22-25, 2013, in Chicago, ICDS was a whirlwind conference with a chance to meet with NFCA’s distinguished Scientific/Medical Advisory Council and catch up with fellow colleagues from all walks of the celiac disease field. We also enjoyed the opportunity to meet new people and, finally, put faces to names of individuals we regularly work with remotely.
In her October 2013 newsletter note, NFCA President Alice Bast shared some highlights from NFCA’s experience at ICDS 2013. But this was just a sneak peek! Some of our NFCA staff have compiled an informal list of discussion topics and statistics that resonated the most. To give you an idea of individual interests, we’ve categorized the meeting highlights by staff member.
Head to NFCA’s Research News Feed on CeliacCentral.org to get all the highlights!
It’s summertime and lots of women are thinking about how we look and, after that, how we feel. On Saturday, June 8th, Philadelphia magazine hosted their annual Be Well Philly Boot Camp at the well-equipped Recreation Center on the campus of Drexel University. The goal was to motivate, educate, and empower women to get healthy and fit.
And, did they ever!
The 500 gals attending this amazing event checked out all manner of health and fitness items. Penn and Drexel medical teams were there with health tips and on-site screening. There were cooking demos hourly and delicious food sampling, plus group fitness classes — Zumba, yoga, and spinning. If learning how to climb a rock wall is on your bucket list, this was the place to be. Some attendees even grabbed a massage!
And, there was a chance to talk to the experts. All during the day, there were panel discussions on a wide variety of subjects from advice about the right running shoes to how to have more energy. Representing NFCA, I joined a panel called “Gluten Free Guide”. Our moderator, Cass Bailey from Slice Communications, has celiac disease and has embraced the gluten-free diet. Joining me on the panel were Michael Savett, publisher of the Gluten Free Philly blog, and Jennifer Fugo of the Gluten Free School.
It was fascinating! The audience had great questions and was eager to learn the “ins and outs” of the gluten-free diet. Plus, there was real interest in what celiac disease and other gluten-related disorders are all about. We talked about the difference between celiac disease and non-celiac gluten sensitivity (NCGS), along with getting tested and what to look for in restaurants as you begin the gluten-free journey. Getting family members tested was an important point for a number of audience members having relatives with celiac disease.
The big question was… “Is it a diet fad, a real medical issue or just a good thing to practice?” This panel did a great job of making sure everyone left with an understanding that there is such a thing as a medically necessary gluten-free diet. For real!
The overall point of the story is that there is no time like right now to start paying more attention to your health. No kidding, it actually does boil down to exercise and diet — perhaps a gluten-free diet!
Spring is has sprung and that means baseball is here! All of us at the National Foundation for Celiac Awareness (NFCA) have started following our favorite teams and are ready for a great season of America’s favorite pastime. And, we are preparing for our annual night out at the ballpark.
This year, Celiac Awareness Night with the Philadelphia Phillies is on Friday, August 16that Citizens Bank Park as the Phillies host the Los Angeles Dodgers. This will be NFCA’s 6th Celiac Awareness Night and we are looking forward to a great night of great baseball.
This year, we are excited to have a special free raffle to offer visitors to our information table near Section 210. Thanks to the Phillies and Aramark, the basket will include Phillies memorabilia, two tickets to a 2013 regular season game in section 116, a preferred parking pass and a complementary food coupon valued at $30. Better yet, there will be an expanded menu at the gluten-free concession stand that is set up for NFCA’s night out.
Last Friday, I went to the Phillies Home Opener. I either am a terrible influence or a great grandmother as I snuck my grandson Zachary out of school for the afternoon so he could cheer on the home team. The weather was perfect, the seats were good and we were all set to start a winning season. Unfortunately, the Phillies weren’t quite as ready as we were and lost to the Kansas City Royals. As the crowd streamed out at the 7th inning stretch, my grandson refused to lose faith and declared, “I am a Phillies fan and I am staying!”
We did have a great chance to check out the new permanent gluten-free concession stand in Section 136. What a boost to the Phillies experience! We had delicious hot dogs and cheesesteaks and watched as people who were thrilled to find gluten-free food so available ordered pizza and chicken fingers. Sweet Christine’s furnished brownies and other sweet treats, along with the hot dog rolls. Of course, you can get a gluten-free brew with that dog—Redbridge beer and Woodchuck Hard Cider.
No matter what the final score, it always is a good day at the ball park. With more gluten-free food, it is even better.
See you at Celiac Awareness Night! You can grab your tickets here.
Two northwestern sections of Philadelphia were jumpin’ on Saturday, January 26th. Weavers Way, the fabulous community owned co-op that has made a name for itself in the Philadelphia region, held its annual Gluten-Free Day from 12 until 4 p.m.
This year, the savvy folks at Weavers Way expanded the event to include both their Chestnut Hill and Mt. Airy stores. Bettina de Caumette, Outreach Coordinator at Weavers Way, put the day together to everyone’s delight. Frigid weather aside, the day seemed just right to explore the wonderful world of gluten-free goodies.
The National Foundation for Celiac Awareness (NFCA) was on hand in both locations to discuss the gluten-free diet and to go beyond that to the underlying need for this special approach to the menu: celiac disease and other gluten-related disorders.
The NFCA team was pleased and proud to have two long-time, stalwart and extremely knowledgeable volunteers distribute literature and answer shoppers’ questions. Becky Lownes Urbano returned to the post she manned last year in Chestnut Hill. Annsley Klehr took a brisk walk from home to spread the word in Mt. Airy. Tema Esberg, a new member of the NFCA volunteer team, joined Becky in Chestnut Hill.
Chestnut Hill store manager Dean Stefano and Mt. Airy store manager Rick Spalek each donated an enormous basket of gluten-free products for a raffle benefiting NFCA. One lucky winner from each store went home with a bounty of delicious treats that will have them trying out new items and enjoying old favorites. For our part, NFCA is grateful for the donation that will go toward our educational programs.
On a normal Saturday, about 1,100 people pass through the doors of Weavers Way in Chestnut Hill. That number swells significantly on Gluten-Free Day and this year was no exception. I don’t know how many came to the Mt. Airy store but it certainly was a steady stream of eager shoppers, many with questions about gluten-free food and celiac disease.
In short, it was great! The NFCA team is looking forward to Gluten-Free Day 2014 at Weavers Way!
It’s time for NFCA’s Appetite for Awareness!
The NFCA Team is very excited about the 2012 edition of this signature event. I can’t wait to see which doctors are paired with which restaurant to prepare and offer true gluten-free delights to our guests. Appetite for Awareness brings out the gourmet in most of us as we table hop between the booths of some of the best restaurants in the Greater Philadelphia area.
Today, I learned that there will be about 60 exhibitors who are ready to highlight the latest gluten-free products and distribute educational materials to all attendees. Add the Beer Garden with flat screen TVs and “the game,” the Children’s Pavilion with games for the whole family, and cooking demos for the Julia Child in each of us, and you have quite an afternoon!
How does the NFCA Team make all of this happen? The short answer is, we don’t. Well, more correctly, we don’t do it alone. Each year, a small army of volunteers puts on their Appetite for Awareness T-shirts and jumps in to help.
Our guests will meet them all, from manning the registration desk to helping at the NFCA Shop to selling tickets for the drawings (including a lease on a Mercedes-Benz!) and much, much more. This volunteer corps is an essential ingredient in the success of each and every Appetite for Awareness that NFCA has held over the years.
This year, over 75 volunteers plus a cadre of students will take the floor to make this the best event ever. Some are first-timers who will be amazed and others are old hands who know the ropes and always are enthusiastic.
If we held a contest for the volunteer who traveled the greatest distance to get to the Historic Strawbridge Building, Cecelia Bonaduce from Baltimore probably would win (plus, she originally hails from California). Most years as an Appetite for Awareness volunteer? Probably Karen Dalrymple and Donna Sawka. Husband and wife teams — Jen and Kenny Arters, Judy and Mike Paul, Eva and Marv Schlanger. More family ties — Patti and Jessica Townsend, Amanda and Sam Beeler, Jody and Bruce Finkel, Sandy and Rachel Cogan, Eileen and Jim Grady. And, organizing this whole team—Julie Cooper. Amazing!
Looking forward to a great time!
In July, I had two golden opportunities to celebrate the generosity of personal friends and friends of the National Foundation for Celiac Awareness (NFCA).
We all love a party but some of us are really good at throwing one of the biggest parties in town. Meet Chris Auman, a member of the NFCA Team who has worked on our events since the day she walked in the door years ago. Chris has been a huge part of the energy and organizational power behind Appetite for Awareness as this fun-and-food-filled event has grown from an intimate evening in a private home to the festival that we enjoy today.
Right now, Chris is organizing the Marketplace for Appetite for Awareness 2012 being held on September 23rd at the Historic Strawbridge Building at 8th & Markets Streets in Philadelphia. If you want to have loads of gluten-free fun, come on down. Chris will be ready for you.
On July 27th, we held a party of a different kind when we celebrated Chris’ birthday. Alice Bast, Chris and I headed to Cantina Feliz in Fort Washington where we enjoyed a delicious gluten-free Mexican meal. The gazpacho with watermelon, tomato, cucumber, a house specialty, was a big hit at the birthday table.
On Sunday, July 29th, I made my way from my home in Blue Bell, PA to the absolutely fascinating home of Jennifer and Ken Arters in Downingtown, PA. Jen was holding an in-home shopping spree benefiting NFCA. Featuring jewelry from Stella & Dot, along with fabric purses and bags of all kinds from Thirty-One, this trunk show was like Christmas in July, as far as I was concerned. Temptation was everywhere. Yes, I succumbed!
Jen prepared delicious gluten-free treats from tasty miniature meatballs to fabulous mini red velvet cupcakes. And, yes, I succumbed.
Jen and Kenny showcased these delightful gifts in their 1850s house lovingly being brought back to its former glory. Restoration is hard work designed for talented and skilled people with a passion for making things better. Jen and Kenny have an equal passion for raising awareness of celiac disease. All of us at NFCA are grateful for their spirit of volunteerism and their dedication to the celiac cause. You will see them at Appetite for Awareness – helping out, of course.
Celiac Disease Information, Please!
Even the slightest brush with celiac disease and other gluten-related disorders can bring questions to mind. Lots of questions. The first question usually is … where do I turn for the answers that I need right now?
Most of you know that all of the information on www.CeliacCentral.org is available free of charge and to all comers. The site covers lots of topics from “What is Celiac Disease?” to “Can I eat spelt on a gluten-free diet?” to getting the scoop on the latest research in the field.
But, from time to time, you just need to ask someone who can and will respond to you directly and personally. Enter the marvelous ladies who have volunteered to answer the questions coming to NFCA via info@CeliacCentral.org.
Last month while I was visiting my family in Virginia, I slipped away to Washington, DC, to have lunch with one of these amazing women. Gayle Wald has been ‘manning’ the info@CeliacCentral.org account for over three years, come rain or come shine. She has helped to train the new kids on the block and, undoubtedly, has dispensed answers and information to hundreds of writers with questions about their own situations.
When Gayle is not helping fellow celiac patients, she works as a professor at The George Washington University in Washington, DC, and is Chair of the Department of English there. She lives in the District with her husband and son.
At Gayle’s suggestion, we had a healthy and delicious lunch at Founding Farmers, a restaurant specializing in farm-to-table fare just a few blocks from the White House vegetable garden. And, yes, they serve gluten-free dishes.
Unbelievably, this was the first time that I had met Gayle personally. It was great fun getting to know the woman behind the email address. The National Foundation for Celiac Awareness (NFCA) is extremely fortunate to have the benefit of her experience, along with the true care and concern that all of the ‘Women of Info@’ bring to this program. I truly look forward to meeting each one personally, a neat trick as they live across the country from Pittsburgh to Wyoming to Iowa and beyond.
So, when you send NFCA an email, you will encounter one of these very special volunteers:
Rebecca Lownes Urbano
A huge thanks to them all –and to Joanne Gallagher for keeping their “on duty” schedules straight. They are maaahvelous!